Since I have been so remiss with posting, I see that I never mentioned Miles' IEP meeting with our school district. After all the assessments, which took forever to get done as everyone was on summer vacation, I got a phone call from the Special Ed. department letting me know that Miles was not going qualify for going to the county's hard of hearing preschool program. This was a moment of both joy and panic as it meant that he was doing so well that he didn't need the program but it also meant that we now had to scramble to find a preschool for him. Luckily, we were able to find a local program that we liked. We had to take three days a week until they had a full time spot open up but we were able to coordinate with our daycare provider from the year before.
The IEP meeting caused me no end of stress as it started with the determination of whether or not he even qualified for special ed. services. In my mind, I was screaming, "WHAT?!? Do you not see the hearing aids he wears in his ears??? Do you think we do this for fun???" But finally someone said that he would not be able to meet his full potential without support, so he qualified. Then the director told me that to receive speech services through the district, we would have to bring him to the school during school hours.
"Do you not understand that we are both teachers? How are we supposed to do that?"
Happily, the speech therapist that would be working with Miles said that she would arrange a way to come to his preschool to work with him there. And she has. Miles loves her and has made enormous progress.
While I'm pleased with how things turned out, I'm annoyed that they couldn't work out the details any earlier. When the whole process began, we asked that decisions be made earlier rather than later as Jeff and I had to be able to hit the ground running once the school year began.
All in all, Miles is thrilled with his new school, he is making lots of hearing friends and is doing great!
Monday, June 6, 2011
Saturday, June 4, 2011
Been so long...
A friend commented that I've been off the blogging wagon. True enough.
I originally started this a blog to talk about the issues of raising a child who is hard of hearing but Miles has made such progress that it is almost a non-issue.
That is, if you don't count the trips to the audiologist, the worry over ear wax and ear infections, IEP's and inattentive Special Ed Departments. But, really, it has been smooth sailing. Miles is starting to be very aware of pronouncing his "s" sound and is working so hard. He is almost 95% intelligible by strangers and his vocabulary is coming along nicely.
So I guess now I get to turn this into another blog about how wonderful my family is.
I have been surprised by how much of a boy Miles is turning into. These days, he is all about setting things on fire and putting them out, making things explode and shoot out. We recently went to a birthday party at Pump It Up (a party venue that has inflatable jumpy houses, slides and other entertainment.) While the girls were all about the slides, the boys were all about these air cannons that were there. The cannons were air powered and shot out these Nerf type balls that wouldn't cause any damage if one were hit. Miles would have spent the entire two hours in there. We finally convinced him to give the slides a try and, after some trepidation, he was hooked.
He is also all about the roller coasters. We went to Disneyland this spring and he made his mama's heart sing by taking quickly to the "big" roller coasters. Now that he is 40 inches tall, he can ride on Thunder Mountain and Space Mountain. He had no fear. I was amused to see that it was rides like Roger Rabbit that freaked him out.
But he is also his daddy's boy. We went to see Jeff conduct a local choir recently and it was the first time in awhile that Miles got to see his daddy in action. Miles was really impressed and surprised me by being a great audience member through a full hour of performance. When we got home, he wanted me to conduct him singing and then wanted to switch roles. When Jeff arrived home, Miles wanted to try on Jeff's tuxedo.
I originally started this a blog to talk about the issues of raising a child who is hard of hearing but Miles has made such progress that it is almost a non-issue.
That is, if you don't count the trips to the audiologist, the worry over ear wax and ear infections, IEP's and inattentive Special Ed Departments. But, really, it has been smooth sailing. Miles is starting to be very aware of pronouncing his "s" sound and is working so hard. He is almost 95% intelligible by strangers and his vocabulary is coming along nicely.
So I guess now I get to turn this into another blog about how wonderful my family is.
I have been surprised by how much of a boy Miles is turning into. These days, he is all about setting things on fire and putting them out, making things explode and shoot out. We recently went to a birthday party at Pump It Up (a party venue that has inflatable jumpy houses, slides and other entertainment.) While the girls were all about the slides, the boys were all about these air cannons that were there. The cannons were air powered and shot out these Nerf type balls that wouldn't cause any damage if one were hit. Miles would have spent the entire two hours in there. We finally convinced him to give the slides a try and, after some trepidation, he was hooked.
He is also all about the roller coasters. We went to Disneyland this spring and he made his mama's heart sing by taking quickly to the "big" roller coasters. Now that he is 40 inches tall, he can ride on Thunder Mountain and Space Mountain. He had no fear. I was amused to see that it was rides like Roger Rabbit that freaked him out.
Sunday, July 18, 2010
My Most Wonderful Husband
Right around the Fourth of July, Jeff was going to take Miles to the farmer's market. As they got ready to go, Miles pulled out his hearing aids, telling Jeff, "I want to be like you, I want to be like you."
Hearing this just about broke my heart. But Jeff didn't skip a beat.
"You are just like me. You look just like me. You love music like I do. You have blond hair like I do. But I wear glasses and you wear hearing aids."
I love that man more and more each day.
Hearing this just about broke my heart. But Jeff didn't skip a beat.
"You are just like me. You look just like me. You love music like I do. You have blond hair like I do. But I wear glasses and you wear hearing aids."
I love that man more and more each day.
Here I Am!
I have been very remiss in my blogging. It must mean that life is getting good. Or just very busy.
In April, my brother came into town. He lives in Hong Kong and the last time I saw him, my father was dying. Before this trip, he and his wife had yet to meet Miles. That gives you an idea on how long ago it was. He came to the Bay to run in the Big Sur International Marathon.
We met up with Evan on Thursday when he came to our house for dinner. Miles and I met him in the driveway where he proceeded to become one of Miles' favorite people by giving him a present, a colorful octopus from Sri Lanka (my brother travels the world). Miles showed off his biking skills by riding down to the park and then impressed Evan with his strong throwing arm by tossing back some softballs from the girls practicing on the baseball fields. Evan secured his position as "great uncle" by throwing Miles around and tickling him until he was red in the face.
We got to see both Evan and Cheryl again on Saturday when we drove down to Carmel where they were staying for the marathon the following day. Miles was thrilled to go to the beach, though it wasn't as warm as the day we went to Santa Cruz. We walked on the shore, explored the pretty downtown and then went to Point Lobos for a hike and some baby harbor seal watching. The mamas were out having their pups and warming themselves in the sun.
On our way home, we stopped in Santa Cruz at a Mexican restaurant we have been to with friends. There was a table of women next to us who, by their conversation, were obviously teachers. As they got up to leave they stopped to fawn over Miles. One commented on his hearing aids and said that she was a teacher at a school that had deaf and hard of hearing program. I asked her which one. She said, "Oh, it's in Santa Clara," which made me ask again, "Which one?" When she told me the name of her school, I said, "That's the school we're hopefully going to send him to for preschool." Of course, that set off a long conversation about the program and how wonderful the teachers are.
As a side note, Miles' Early Start teacher had to be a little aggressive to get the assessment process into play. I'm hoping we don't get closed out but they are sending someone to begin the evaluations in about two weeks. Space in this program is surprisingly limited.
We went to see the ENT at the end of April as Miles was showing fluid in one of his ears again. Both tubes were working their way out of his ears so we needed to do the whole process again. While we were there, I mentioned how loudly he snored and that he seemed to always have a runny nose. "Ah, sounds like adenoids. We could do the scope but we might as well just do it while he's out during the surgery."
Mid-May, we went to Lucille Packard Children's Hospital where Miles got himself a new pair of ear tubes and was unburdened of his abnormally large adenoids. He now sleeps silently and there is no sign of snot!
In April, my brother came into town. He lives in Hong Kong and the last time I saw him, my father was dying. Before this trip, he and his wife had yet to meet Miles. That gives you an idea on how long ago it was. He came to the Bay to run in the Big Sur International Marathon.
We met up with Evan on Thursday when he came to our house for dinner. Miles and I met him in the driveway where he proceeded to become one of Miles' favorite people by giving him a present, a colorful octopus from Sri Lanka (my brother travels the world). Miles showed off his biking skills by riding down to the park and then impressed Evan with his strong throwing arm by tossing back some softballs from the girls practicing on the baseball fields. Evan secured his position as "great uncle" by throwing Miles around and tickling him until he was red in the face.
We got to see both Evan and Cheryl again on Saturday when we drove down to Carmel where they were staying for the marathon the following day. Miles was thrilled to go to the beach, though it wasn't as warm as the day we went to Santa Cruz. We walked on the shore, explored the pretty downtown and then went to Point Lobos for a hike and some baby harbor seal watching. The mamas were out having their pups and warming themselves in the sun.
On our way home, we stopped in Santa Cruz at a Mexican restaurant we have been to with friends. There was a table of women next to us who, by their conversation, were obviously teachers. As they got up to leave they stopped to fawn over Miles. One commented on his hearing aids and said that she was a teacher at a school that had deaf and hard of hearing program. I asked her which one. She said, "Oh, it's in Santa Clara," which made me ask again, "Which one?" When she told me the name of her school, I said, "That's the school we're hopefully going to send him to for preschool." Of course, that set off a long conversation about the program and how wonderful the teachers are.
As a side note, Miles' Early Start teacher had to be a little aggressive to get the assessment process into play. I'm hoping we don't get closed out but they are sending someone to begin the evaluations in about two weeks. Space in this program is surprisingly limited.
We went to see the ENT at the end of April as Miles was showing fluid in one of his ears again. Both tubes were working their way out of his ears so we needed to do the whole process again. While we were there, I mentioned how loudly he snored and that he seemed to always have a runny nose. "Ah, sounds like adenoids. We could do the scope but we might as well just do it while he's out during the surgery."
Mid-May, we went to Lucille Packard Children's Hospital where Miles got himself a new pair of ear tubes and was unburdened of his abnormally large adenoids. He now sleeps silently and there is no sign of snot!
Friday, April 9, 2010
Mama's Boy turns into Daddy's Boy
Miles has always been a mama's boy. For the first months, he got all his nourishment from me so this made complete sense. We started to notice that Miles believed that Daddy was for fun and Mommy was for comfort. Then there came a time when Jeff would go to attend to Miles' needs and he would send him away, wanting me. He would want me to carry him even if Jeff offered to, he would want to hold my hand or sit in my lap, even if Jeff was there.
But there is a new shift in his personality. Two days ago, as we all got home from work and daycare, I watched Miles follow after Jeff as we marched around to the front of the house. Jeff absentmindedly pulled a piece of ivy leaf off the fence as he walked. Miles, walking behind him, did the exact same thing, imitating his daddy.
Later in the evening, Jeff was using the electric drill/screwdriver to get some screws out of a piece of wood and, of course, Miles wanted to watch. Jeff warned him not to get too close as the drill could be dangerous and showed him where he had cut his finger. As we went upstairs to get ready for bed, Miles went straight to his little tool kit, got out the drill, and started "working" on his crib. Then he showed me his "ouwie" where he too "cut himself with the drill."
The funniest thing is that Miles is now starting to make the distinction between boys and girls. He knows that he has a penis and daddy has a penis. The other day he asked me if I had one. So begins the birds and the bees conversations...
But there is a new shift in his personality. Two days ago, as we all got home from work and daycare, I watched Miles follow after Jeff as we marched around to the front of the house. Jeff absentmindedly pulled a piece of ivy leaf off the fence as he walked. Miles, walking behind him, did the exact same thing, imitating his daddy.
Later in the evening, Jeff was using the electric drill/screwdriver to get some screws out of a piece of wood and, of course, Miles wanted to watch. Jeff warned him not to get too close as the drill could be dangerous and showed him where he had cut his finger. As we went upstairs to get ready for bed, Miles went straight to his little tool kit, got out the drill, and started "working" on his crib. Then he showed me his "ouwie" where he too "cut himself with the drill."
The funniest thing is that Miles is now starting to make the distinction between boys and girls. He knows that he has a penis and daddy has a penis. The other day he asked me if I had one. So begins the birds and the bees conversations...
Wednesday, March 31, 2010
Hearing test
We went for Miles' mid-year hearing test today. His hearing is generally stable but he has some fluid in his right ear which knocks that ear from mild-moderate to moderate-severe. The tubes we had put in last year in February are starting to come out, the right one may be completely out, so now we have to go through the whole process again; ENT then possibly another tube surgery.
We also had his first transition meeting for preschool yesterday. We are pushing for an oral/auditory program they have in Santa Clara but we'll have to see if there is room. I'm willing to consider other options but everyone involved has agreed that the district's special education preschool would be inappropriate for Miles.
We also had his first transition meeting for preschool yesterday. We are pushing for an oral/auditory program they have in Santa Clara but we'll have to see if there is room. I'm willing to consider other options but everyone involved has agreed that the district's special education preschool would be inappropriate for Miles.
Tuesday, March 30, 2010
Moments of Spontaneity
Some of the best moments in my life have been spontaneous; moments of little planning and big exploration or learning or discovery.
Jeff's 40th birthday was last Sunday. I had tried to press him into some kind of celebration. Dinner with friends? A party? But, while he wanted to mark the occasion, he didn't really want to make a big deal of it. So I was very pleased when he woke up Sunday and said, "I want to go to the beach. Miles, you want to go to the ocean?"
And, of course, Miles was game.
We packed up what we thought we would need and headed south to Santa Cruz. Equipped with stroller, sunscreen, a little food and drink, bathing suits and a credit card, we set off, not quite sure where we were headed except to the ocean.
It was a marvelous day, sunny, not too hot but definitely warm. When we got there, we followed the crowd to the Boardwalk and checked out the rides that would be appropriate for Miles. But when he saw the ocean, Miles knew what he wanted to do. We headed down to the beach, took off our shoes and headed into the ocean to get our feet wet. At first, Miles was unsure that he really wanted to get wet. After a few times of dipping in his toes as the waves rolled in, he was ready to change into his bathing suit and get in. He had a great time running in and out of the waves with Jeff and there was a lot of laughing and splashing. As we got wet in the ocean, we walked along the beach towards the pier. It was about lunch time so we made it onto the pier and looked for a place where we could grab a quick seafood lunch. We ate outside in the sun and then got Miles in the stroller for a little snooze.
We walked up the hill to where we could watch the surfers while Miles slept. When he woke, we continued up the coast to where there was a paddleboard competition. Then we headed back down the hill to the Boardwalk where Miles got a chance 
to pilot his own helicopter. I wasn't sure that he was going to be happy having to ride on his own but he was smiling ear to ear as he figured out how to make the helicopter g
o up into the air.
With all areas of fun covered, we headed home for dinner. Miles took a bath, we ate leftovers for dinner and then finalized Jeff's birthday with some cake and a candle. It was one of those days that I will hold dear for a long time.
Jeff's 40th birthday was last Sunday. I had tried to press him into some kind of celebration. Dinner with friends? A party? But, while he wanted to mark the occasion, he didn't really want to make a big deal of it. So I was very pleased when he woke up Sunday and said, "I want to go to the beach. Miles, you want to go to the ocean?"
And, of course, Miles was game.
We packed up what we thought we would need and headed south to Santa Cruz. Equipped with stroller, sunscreen, a little food and drink, bathing suits and a credit card, we set off, not quite sure where we were headed except to the ocean.
It was a marvelous day, sunny, not too hot but definitely warm. When we got there, we followed the crowd to the Boardwalk and checked out the rides that would be appropriate for Miles. But when he saw the ocean, Miles knew what he wanted to do. We headed down to the beach, took off our shoes and headed into the ocean to get our feet wet. At first, Miles was unsure that he really wanted to get wet. After a few times of dipping in his toes as the waves rolled in, he was ready to change into his bathing suit and get in. He had a great time running in and out of the waves with Jeff and there was a lot of laughing and splashing. As we got wet in the ocean, we walked along the beach towards the pier. It was about lunch time so we made it onto the pier and looked for a place where we could grab a quick seafood lunch. We ate outside in the sun and then got Miles in the stroller for a little snooze.
We walked up the hill to where we could watch the surfers while Miles slept. When he woke, we continued up the coast to where there was a paddleboard competition. Then we headed back down the hill to the Boardwalk where Miles got a chance 
to pilot his own helicopter. I wasn't sure that he was going to be happy having to ride on his own but he was smiling ear to ear as he figured out how to make the helicopter g
o up into the air.With all areas of fun covered, we headed home for dinner. Miles took a bath, we ate leftovers for dinner and then finalized Jeff's birthday with some cake and a candle. It was one of those days that I will hold dear for a long time.
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